Ethan’s Progress Report

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I am so excited tonight that I am not sure if my words will even make perfect sense. Something happened tonight that was just incredible.  It filled my heart with total and complete joy, and I will get to it all shortly.

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First of all, though, I want to start with my sweet boy’s birthday.  Ethan is now eight, and I have a feeling that it is going to be his best year yet.  Whenever I woke up, I realized that I had not planned a special birthday breakfast for him.  And, well, that just was not going to do.  I had to do something to let him know that it was one of the best days of the whole year. So, I quickly got dressed, jumped in the van, and took off to the doughnut shop at 5:45 AM. Yep, that is fierce momma love for a boy who has changed my life in wonderful, amazing ways.

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As if the day could get any better than doughnuts, it absolutely did when I took him to work with me.  I was a substitute teacher in his class, and I could not have asked for a better job for the day.  Getting to be with him on the exact moment he was born was perfect.  I did not even realize that he had walked into the classroom right at the time he was born until later that day when I was wondering where we were at 10:06 AM.  Yes, the day was beautiful, and the angels, unicorns, and rainbows surrounded us all day, working their magic to orchestrate a beautiful day for both of us.

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Ethan chose pizza and little bitty cookies for his birthday dinner.  He was so excited to celebrate his special day, just having a calm family dinner.  That is my Ethan.  Family means the world to him.  We are his safe place…and he is ours, too.

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We gave him most of his presents at his birthday party, but we saved one for his actual birthday.  He was so happy and surprised to open up a telescope.  He will love looking at the moon, stars, and hopefully even some planets.

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So, the day was perfect.  In every single way. I did not know that it could get any better…until today.  We were sitting and doing his homework.  On Monday, homework had him a little frustrated, and we had decided to slow things down a little.  His confidence means the world to us.  He is so peaceful and happy in his world, and we never want to do anything to change that.  So, when we sat down to do homework today, it was a little matching sheet.  I knew that he could do the matching part very easily, so I started pointing to the words.  On the very first one, he signed and said the word before matching it.  I was excited, so we went on to the next one.  He immediately signed it.  There were six words on that sheet, and he signed every single one of them the very first time.  My boy was reading words, and I was doing a happy dance while speed dialing his teachers.  As I left his first teacher a voice mail, Ethan was just beaming.  I was able to speak to his second teacher, and she was just as excited as I was.  She immediately said, “Do you think he will do it for me tomorrow?”  I love that.  I love that we have surrounded Ethan with people who love him, who celebrate the same things that we celebrate, and who know that those little steps are huge steps for our sweet Ethan.

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I am not sure where we will go from here.  I am not sure if he will perfectly read the words tomorrow.  I am not sure when he will add more words to the six that he signed so perfectly today.  But, I do know this.  I do know that we will continue to celebrate the big and the little steps on this beautiful journey with our amazing 8-year old magical, incredible little boy.

 

Ethan’s Progress Report

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Ethan is continuing to amaze us every single day.  Honestly, I did not even know that he could amuse and amaze us even more than he already did, but he does.  It is just part of his magic, I guess.

He had a great first week of school.  His teacher is unicorns and rainbows all wrapped into one.  She is magic, too.  And, I know with all of my heart that she and Ethan are meant to be together in 2nd grade.  She will appreciate all of the amazing things about him that make him special, unique, and wonderful, and she will also determine exactly how to communicate with him so that his strengths can shine every single day.  She will do all of that while simultaneously loving him as if he is the only child in the room.  That is just who she is.  She will do that with every single one of her students.

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Ethan’s language is continuing to unfold.  If we ever play charades, I definitely want him on my team.  He can act out a story with extreme accuracy, all the while hitting the high dramatic notes and the low somber ones. He uses words in between when things need extra emphasis.

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He is also gaining more true words.  It is still hard for him to come up with some of them on his own, but he will get there.  The fact that his speech therapist came out beaming on Tuesday says it all.  She was honestly impressed that he had been at school all day and still worked so hard for him.  Ethan was clearly proud of himself.  He held a small smile on his face the entire time that she was telling me about his progress.  And, the other moms in the room were listening, too.  Everyone cheers for my sweet Ethan. Sometimes I am amazed by the following that he has.  But, I should not be.  Because he truly is just that amazing.

Endoscopy – Round 4: An Ethan Update

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Ethan had his fourth endoscopy today.  It was just a follow-up endoscopy to show if Ethan’s stomach ulcers were gone and his esophagus was still healing on the reduced medication.

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I felt great about it and was very peaceful headed to the surgery center this morning.   As we were waiting in the lobby, I noticed a huge unicorn on the wall, and I laughed as I got up to take the picture.  As much as I say that unicorns and rainbows are everywhere, if you just look, I was still surprised to see a huge one on the wall as we were waiting for my sweet Ethan to undergo yet another procedure.

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When I saw that we personally knew three of the four doctors (GI, Ophthalmologist, and ENT) performing surgeries this morning, I was once again a little surprised.  Honestly, we should not have to know that many doctors.  But, as I looked at their names, more peace came over me.  I would highly recommend any of the three of them to anyone I know.  They are amazingly great doctors, and I knew that they were there for a reason this morning. When the angels hear the call, they jump over the unicorns and rainbows to get there.

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Ethan did great, and as he was being wheeled back into the surgery room, he was blowing kisses to me.  He truly is so sweet.

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As the minutes started ticking closer to an hour, I became a little concerned.  Even when Ethan had ulcers, it seemed that the doctor came to get me much sooner.  I knew that they were running behind schedule some, so I occupied my brain by reading, tweeting, and browsing Instagram.

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Finally the doctor came around the corner, with pictures in hand.  I said, “Please tell me that you have me some good pictures there.”  He smiled and said, “Good and bad.”  My heart sank a little, but I trust this doctor so much.  And, I honestly believed that there was nothing that he could tell me that he would not be able to fix.

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He slowly went through all of the pictures with me.  The good news is that the ulcers are still gone, and after we receive the biopsy report, we are hopeful that we will be able to reduce his medication to a lower dose, less potent one.

The bad news is that Ethan has yeast in his esophagus and duodenum.  The doctor is not sure why it is there yet.  It is possible that it is Esophagitis Candida.  We will know more late this week or early next week, once we receive the biopsy results.  It is possible that Ethan’s immune system is compromised, but we do not know why.   He has had a great, healthy summer.  The only indication that anything has been wrong is that his appetite has not been as strong as normal.

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For now, we will wait.  We are thankful that the news was not terrible, and we are hopeful that the yeast can just be cleared up with some anti-fungals.  The doctor is always cautious and wanted to wait for the results so that we will know exactly how to medicate Ethan instead of just guessing.  That is one of the many reason why I love him.  I have already made a trip to the store for yogurt and probiotics.  We have gone down the naturopathic path enough to know that those two things are always a good, healthy alternative until we know more. What we do know is that the sun will come up tomorrow, and we will continue our journey, one step at a time.

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Thank you so much for your thoughts and prayers.  They were truly felt, which is why I was somewhat amazed to see the unicorn and all of the doctors.  When the unicorns, rainbows, and angels all show up, I know that there is magic and miracles happening all around us.