An Ethan Update

Photobucket

I just now talked to the nurse for Ethan’s GI doctor.  And, we have great news!  The ultrasound was perfect, which means that all of his organs looked great.  Given that this has been going on so long, that was one of the biggest concerns…that something had been missed that he might have had since birth.  Knowing that all of his organs are perfect and functioning at full capacity is a huge blessing and a huge relief.

The test did indicate that there was some mild thickening in the fold of his stomach.  It likely indicates inflammation.  We had already scheduled the endoscopy for Monday, November 28, just in case.  The doctor does want us to keep that appointment because that is the procedure that will determine if he has been refluxing and if he has any damage to his esophagus.   While we are hesitant to keep running tests, we also would like a definitive diagnosis before starting any medication to treat symptoms, given that we have done that so often in the past.

This morning, I scheduled his speech evaluation for the possible verbal apraxia.  That appointment is on Monday, November 21.  The evaluation is an hour, and the therapist will determine if he has verbal apraxia or something else that they can help with extensive therapy.

On a personal note, please keep my cousin’s (Julie) family in your prayers.  This morning they experienced one of the most heartbreaking things that a family can ever experience.  Their baby girl, Megan Grace, was born via c-section.  Her heart had stopped beating before she was born, so their angel was carried away to be in heaven before they ever had a chance to hold her.  We have known for a few months that she had health complications that were not going to allow her to live for more than a few hours.  But, knowing about it and actually facing it in real life today are two different things.  My heart is breaking for them.  They have remained strong and faithful through it all, stating last night, “It brings me peace knowing that our angel is in God’s arms today.”

In closing, I wanted to share what her mom had to say, because it is beautiful and gave me some peace.  She said, “As I have told everyone, God is using your family as an example to show others how to survive adversity. Our Angel is visiting with all her Great Great Grandparents now. I know the race is on to see who gets to hold her the most!”  I can picture my Papaw holding that baby girl, and the thought of that has given me some peace today.

Photobucket

Thank you again for all of your thoughts and prayers.  We truly, truly appreciate it.

Bookmark the permalink.

9 Responses to An Ethan Update

  1. Debbie Tropiano says:

    My deepest sympathies to Julie and her family! I’m so sorry that she’s joined the club, but if she ever needs anything from a long time member, please let me know.

    My baby daughter died at 13 days old in 2000. It’s been a long road but gets less painful each day.

    Prayers to you all!!

  2. Janet says:

    So happy about your news!

  3. Shirlene says:

    Praise God for a Good Report on Ethan and may the next test be a good one as well.

    Prayers for your family for Peace from God himself. I too have lost 2 children. DJ was 10.5 months (died from a hernia June 18th 1993) and Jon was 27 (killed in a car accident on Mar 26 2010). So glad that God has loved one’s there in Heaven for all our little one’s that go before us.

    • Natalie says:

      I had no idea about your losses, Shirlene. You are such an amazing, strong woman, and I am truly impressed with your faith and amazing outlook on life. May God continue to bless you and your family.

  4. Caneel says:

    Ohh, my heart is breaking for them as well! I will definitely be keeping the family in my prayers, as well as your Ethan. Glad to hear the good news and will pray everything else turns out well and you get more answers.
    Caneel recently posted..Yeast RollsMy Profile

Leave a Reply

Your email address will not be published. Required fields are marked *

CommentLuv badge